Sorry for the lack of updates, I'm still alive. I been having some more health problems because it's fall and my symptoms are always are worse then. My doc and I suspect that I have MCAS, which I have posted some info graphs below for you guys. People with hEDS and POTS/Dysautonomia often suffer from Mast Cell Activation Syndrome. I fit the criteria I just need to get the testing done, but this is not a fun disease. I can have and develop anaphylaxis reactions to basically everything. I have to go on this low histamine diet and cut out pretty much everything that I love or risk being constantly ill. Fresh fruits, vegetables, and fresh meat or fresh fish mostly. I can't do anything fun. No alcohol or fermented beverages, no fermented foods, no pickled or canned foods, no dried fruit, no processed or smoked meats, no aged cheeses, no shellfish, no nuts, no beans and pulses, no chocolate, no vinegar, no preservatives, no artificial coloring, no citrus, no nightshade vegetables, no black or green tea, but at least I have coffee! I can't eat out ever again, which I probably wasn't going to anyway, since I nearly always get sick at this point. I am just so fucking mad that there is so little that I can eat. Going gluten free was bad enough, I dunno if I can cut out everything I love to eat. But at least if I end up needing a feeding tube my best friend will already have one and we can be tube buddies.
I just want a tiny mold free house that I can hobble around with a backyard for my dog and space for a garden.
If you can spare anything, please check out my website and donate to my Amazon wishlist for various medical supplies I need. I'm constantly updating it with various things that could help make my life a little easier and a little more accessible, or will help relieve symptoms. Now here's some facts!
